Wednesday, April 8, 2009

Lyme Disease Shirts

I added three new shirts to our Lyme Disease CafePress store and would love for you to check them out. If you have a few extra dollars please visit our store and buy one item. All proceeds help us pay the cost of my husband's Lyme Disease treatment. Click on any shirt to be taken to our store.




Sunday, April 5, 2009

Lyme Disease Tremors

Scott had a really bad day last month and I wanted to document some of his symptoms but have not been successful in transferring the video from our nice camera. This video was taken from my cell phone...sorry it is so blurry. I just wanted you to see some of what Scott has to deal with because of Lyme Disease. This is what happens when all of his cells are misfiring. He was just trying to hold a pen but his hand kept shaking and jumping. He had problems eating lunch because he could not get the food into his mouth...his hand kept jumping and shaking. Please continue to pray for his health. Please educate those around you on what Lyme Disease is, Where you can get it and What needs to be done about it. More on this later....


Praying For Lymies

I found some new Lyme blogs tonight and wanted to share one with you.



At Praying For Lymies they ask you to pray for their Lymie of the Week. This is being hosted and monitored by Jennifer from Living the Lyme Life and also assisted by Melody from Waiting Quietly. You have the opportunity to pray for the Lymie by emailing your prayer and the girls will add the post to the site.

I thought this was such a great idea that I wanted to plug it on our family blog. We have had hundreds of people pray us thru these last 2 years and we are eternally grateful. God has sustained us by the generosity of His people. Please take a minute to visit the blog and pray for the Lymie of the Week: Amy

Friday, February 27, 2009

Lyme Disease Shirts

We have had a great response to our new Lyme Disease Awareness store and know that you are proudly displaying your support for other Lymies. As we struggle with this disease more design ideas pop into my head, so check back often for new items. You can purchase these itmes here: www.cafepress.com/LymiesUnite

Sunday, February 22, 2009

Lyme Disease Awareness Apparel

Take a look at our CafePress store full of Lyme Disease Awareness apparel. Click on each design to be taken to the CafePress page so you can look at all the options. All proceeds go towards the cost of Scott's medical care. It costs about $1000 a DAY to treat Scott's Lyme Disease and we are always looking for ways to pay for his treatment. Thank you for your help!
Click HERE to be taken to the CafePress store to see all of the t-shirt designs.



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Tuesday, February 17, 2009

It's Time For Another Lyme Lesson

Because this illness is commonly misunderstood, us lymies are big on educating those around us. We become Lyme patient advocates and strongly believe in EVERYONE being tested. Here are some fun facts for you to review...

1. Fewer than half of patients with Lyme disease recall a tick bite. In some studies this number is as low as 15% in culture-proven Lyme borrelial infection.

2. Fewer than half of patients with Lyme disease recall any rash. Although the bull's eye presentation is considered classic, it is not the most common dermatologic manifestation of early-localized Lyme infection.

3. There has never in the history of this illness been one study that proves even in the simplest way that 30 days of antibiotic treatment cures Lyme disease. However, there is a plethora of documentation in the US and European medical literature demonstrating histologically and in culture that short courses of antibiotic treatment fail to eradicate the Lyme spirochete.

4. An uncomplicated case of chronic Lyme disease requires an average of 6-12 months of high-dose antibiotic therapy. The return of symptoms and evidence of the continued presence of Borrelia burgdorferi indicates the need for further treatment. (Imagine how long a COMPLICATED case, with co-infections needs to be treated?)

5. Many patients with Lyme disease require treatment for 1-4 years, or until the patient is symptom free. Relapses occur and maintenance antibiotics may be required. There are no tests available to assure us whether the organism is eradicated or the patient is cured.

6. There are 5 subspecies of Borrelia burgdorferi, over 100 strains in the US, and 300 strains worldwide. This diversity is thought to contribute to Borrelia burgdorferi's antigenic variability and its various antibiotic resistances.

7. Lyme disease is the latest great imitator and should be considered in the differential diagnosis of MS, ALS, seizure and other neurological conditions, as well as arthritis, CFS, gulf war syndrome, ADHD, hypochondriasis, fibromyalgia, somatization disorder and patients with various difficult-to-diagnose multi-system syndromes.

8. And last but not least....a quick list of symptoms. Do you see yourself in this list?
Symptomatic presentations of Lyme disease include:
  • Fatigue
  • Low grade fevers, "hot flashes" or chills
  • Night sweats
  • Sore throat
  • Swollen glands
  • Stiff neck
  • Migrating arthralgias, stiffness and frank arthritis
  • Myalgia
  • Chest pain and palpitations
  • Abdominal pain, nausea
  • Diarrhea
  • Sleep disturbance
  • Poor concentration and memory loss
  • Irritability and mood swings
  • Depression
  • Back pain
  • Blurred vision and eye pain
  • Jaw pain
  • Testicular/pelvic pain
  • Tinnitus
  • Vertigo
  • Cranial nerve disturbance (facial numbness, pain, tingling, palsy or optic neuritis)
  • Headaches
  • Lightheadedness
  • Dizziness
This is a small list of the various symptoms that Lyme disease can cause. You can find a more complete list HERE. The info. in this post came from Turn The Corner Foundation. You can also find info. HERE on the FIRST test that you would need to have done if you are concerned about Lyme disease. Take a few minutes and do some research. This debilitating illness is real and it is everywhere.